I Have Scleroderma

 

 

 
Links:

Organizations
Scleroderma Research Foundation - http://www.srfcure.org
Scleroderma Association Queensland - http://www.scleroderma.org.au/
Scleroderma Foundation - http://www.scleroderma.org/

Talk to us
Yahoo Scleroderma Support Group (formerly Club) - chat, message board/email list, links
Newsgroups - alt.support.scleroderma, alt.support.arthritis, alt.med.fibromyalgia
SD World email list
Yahoo group for men whose spouses are autoimmune patients
http://groups.yahoo.com/group/spousalasg/

Other SD and related pages
Connective Tissue Disease - Personal Stories Stories of people living with connective tissue diseases

Scleroderma Friends and Family Yahoo groups, formerly club - for caregivers and other support system members.    Same great features as the scleroderma group.
Doris Reichard's Internet Haven
Ed Harris' Scleroderma FAQ
Coping with Crest, Donna's great site
Kirsten Wallin's page on her stem cell transplant - "I knew that a stem cell transplant was not necessarily a cure, but there was a chance that my pain would go away, and my skin would begin to soften."
Fibromama's Place - Fibromyalgia and autoimmune diseases
Scleroderma A to Z - a large site with lots of information

Of interest
Is scleroderma hereditary?
Intimacy and scleroderma
Advances in hand surgery

Resources
Patient to Patient: A Survival Guide
SSA Disability Page
Alternative keyboards and accessories
Mainstream Magazine Online
Job Accomodation Network
RXlist - look up medications - http://www.rxlist.com
Quack Watch - http://www.quackwatch.com/index.html
Centerwatch clinical trial research listing - http://www.centerwatch.com/
Scleroderma Clinical Trials Consortium - http://www.sctc-online.org 

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