I Have Scleroderma

 

 

 
Morphea/Linear
  • sfoltyn - The whole thing gets quite complex.
  • Preetham, 25 - At first, I didn’t know what scleroderma was exactly.
  • Phoebe, 9 - My Morphea first appeared in July last year.
  • Heather, 20 - When I was 6 years old I was told I have scleroderma...Localized thank god
  • Kristina, 29 - I was diagnosed last year in january.
  • Bronwyn, 28 - I panicked and I went to a dermatologist.
  • Melody, 22 - Before too long I noticed some purplish patches creeping up on my forearm.
  • Gina, Danielle's mom - About 8-9 months ago I noticed a bruised like area on my daughters upper back.
  • Leslie - Basically, it's almost as though the condition has snaked itself around me, like it is wrapping me with a garland of discoloration.
  • Briana, 22 - This condition has taken a huge toll on my self-esteem and body image.
  • Emma, Chelsea's mom - I am terrified that they will continue to appear - so far they are bearable but gradually becoming worse.
  • Norma - I'm back now to my old self with what I like to think of as war scars on my leg.
  • Hanna - Her disease doesn't hurt her at all, but her leg is noticeably disfigured.
  • Richard - If people can't accept you for who you are regardless of this condition, are they worth knowing?
  • Hannah - All I do is think about the future and what it holds for her and how people will treat her.
  • Bobbi - The skin was tight and it could not be pinched.
  • Melody - A few weeks later the bruise turned into a scar and became extremely hard.
  • KimI didn't understand what it was, neither did my mother, but the doctor said it wasn't a big deal...
  • Laura - My mum took me to the doctors and he said that it was just a stretch mark...
  • StacyI can't even do a simple thumbs up.
  • Claudia - The area looked a bit discoloured and sort of "veiny".
  • Anonymous - I am writing because I want to give parents hope.
  • David - It goes without saying that I was growing quite concerned.
  • Anonymous - "All of my joints have been affected as well as skin patches on both hands."
  • Ashley, 21 - "They took many biopsies from my skin and analyzed it."
  • Roger, 36 - "As the years progressed, so did my scleroderma."
  • Vicki - "I was only young and found it all quite exciting at first."
  • Izora, 28 - "At the time I thought I had been bitten by an insect and it had caused a rash."
  • Yolanda - "...a small town nurse practitioner had a good hunch what I had."
  • Susan - "There were days when I cried and pleaded not to have to walk." 
  • Tonia - "...it is nice to know that I am not the "only one". 
  • Anon - "After the morphea was arrested, I never thought about the disease again."
  • Theresa - "From that point on it began to progress very quickly and by the age of 6 I was in a wheelchair."
  • Kathy and BJ - "Having scleroderma makes me angry. I don't like to feel different from the other kids."
  • Max - "It's just part of Max, like a birthmark or scar."
  • Coby Heise - "The little brown spots had turned into a pancake-sized behemoth"
  • Dave - " I began to get a a bit worried, and also very conscious of letting people see my body."
  • Angela, 33 - "I went thru alot of tests that one so little shouldn't be subject to."
  • Anita, 42 - "Most of my friends live a long distance phone call away, and it isn't easy to explain what morphea is."
  • Justine, 7 - "The Scleroderma takes up a large portion of Justine’s leg and she has a lot of scarring."
  • Kelly - "I felt I should tell my story to let a newcomer know that you are not alone."
  • Ann Russell - "I made no school friends. I had no interest in learning anything because I was so consumed with how can I make this go away and look normal."
  • Holly, 11 - "Holly is my angel in disguise."
  • Lark, 44 - "I underwent a lot of experimental medical treatment..."
  • Sandy - "About a year ago I noticed a bruised area on my upper arm."
  • Mary McKay, 42 - "The Lord has been good to me."
  • Kim, 31 - "The doctor at the time suggested amputation."
  • Sharon, 45 - "I am still trying to fix if not the disorder at least the side effects that most of the doctors have not bothered to treat."
  • Ed Dunscombe - "My daughter is six years old and has linear scleroderma."
  • Shari Bumstead - "I have an 8 year old son who has linear scleroderma on his face..."
Diffuse CREST/Limited Morphea/Linear Tributes Contact Home